Meet Ilene Miller from the Rare Epilepsy Network (REN)

In this episode of CMV Speaks, we chat with Ilene Penn Miller, J.D., who serves as the Director for the Rare Epilepsy Network (REN) – comprised of 65+ rare epilepsy organizations committed to improving outcomes for patients through collaborative research. Also, she is the Epilepsy Leadership Council Advocacy Co-Chair on the 2020 NINDS Curing the Epilepsies Conference. Ilene is a former Advisor on the NIH National Institute for Neurological Disorders and Stroke (NINDS) Advisory Council (2013-2017). Previously, Ilene co-founded and is past President of Hope for Hypothalamic Hamartomas (hopeforhh.org). She has recently published the Rare Epilepsy Landscape Analysis (RELA) and an editorial in Epilepsy & Behavior - Raring For Change.